Parents of Autism

Comment

Comment by Markus on September 27, 2009 at 10:28am

I am not a Parent, but I suffer from Asparger's Syndrome and PDD.

Comment by Lady Dragon Wolf on May 23, 2009 at 1:43am

As we approach the summer months I'm sue that most of you with Children in the spectrum are reading yourselves for the summer YEP.
My meeting to discuss the YEP is on june 10th. If you ever want to discuss your child's IEP and get ideas or feedback please drop a line. I do ot want this group to become stagnant. I've worked very hard to get it started.

Comment by Lady Dragon Wolf on March 15, 2009 at 11:02am

welcome indigohug9 and thank you for sharing. I hope that you can find some help and solice here. if you need anything let me know.
How old is your child? mine are 14 and 13 both are in the spectrum

Comment by Indigohug9 on March 13, 2009 at 6:09pm

My 7 yr old was diagnosed with 'High Functioning Autism Spectrum Disorder' last year, after a testing and worrying first couple of years at school. Strangely, it was actually quite a weight off my shoulders to finally have a valid explanation as to why things were shaky, despite putting in alot of effort...Frankly, it was such a relief to know that it was her condition, and not my parenting!
Of course, an IEP was immediately set up, yet we're still dealing with the effects which such a late diagnosis has had. People tend to think of 'brainboxes' when they hear 'autism', yet in this case my daughter is behind in alot of aspects at school. I do believe that she is capable of more, but concentration and frustration are variable aspects..
However, I'm just glad that there is an explanation, a plan and so much support available-including this little group!

Comment by Lady Dragon Wolf on March 7, 2009 at 3:11am

Was just wondering if anyone else has any autism links they want to share? I found a new one this morning
http://www.autismsupportnetwork.com

Comment by Lady Dragon Wolf on February 2, 2009 at 1:49am

trhank you leona that is an excellent idea. Thats kind of the reason I started this group. To help other parents.and to get input. MY boys are teenagers now and both have different forms of autism. My boys have been at each other's throats lately. Par for the course I guess stuck sharing a room in a 2 bedroom apartment.

Comment by Leona Heitsch on February 1, 2009 at 6:11pm

Let's invite every parent of an autistic person to WRITE. I started doing this
years ago and some of my stuff can be googled, typing Leona Heitsch Autism.
The more input from more people, the sooner we will find links to help..."autism"
is such a diverse diagnosis. Diversity of parent input and sharing is a must.

Comment by Bormyo on December 9, 2008 at 10:33am

Stromek, I share some of the same feelings as you do about doing things on your own. I have always preferred to do things solo, I didn't like working in groups in school. I do work as a nurse/paramedic which I love. I fly on a helicopter or mobile ICU, where it is myself with a paramedic, and I find that with just two of us, things work really well. I do agree with you too that it is hard to have this kind of attitude in todays work force, but hey, we are who we are right?

Comment by Lady Dragon Wolf on December 9, 2008 at 1:30am

Little Tree/ Stromek, thank you for your comment I know from watching my children how frustrating it can be and Kendall, my oldest, does have anger issues that I'm learning [through workshops] how to teach him to manage them so he doesnt have too many outbursts. I hate when he has a meltdown at school and I get a call because he did and ends up with detention. School system is black and white and there is no gray with them. Thy may have mainstream programs for ASD but they don't really fully understand that every child has their own uniqueness and should be treated that way. But, I also know that my son is very bright, but likes to push the envelope as well.

Comment by LittleTree/Stromek on December 8, 2008 at 9:11pm

Hello, papaed, I've read your notes here & there & like all of them. I just flunked out of the 'can you continue to be employed in the outside world' test spectacularly this year, and was awarded SSD in record time. I kept wanting to fit in (or rather, felt I needed the health insurance!) & finally conceded that it was no longer worth the struggle. Personal integrity won out. I have never 'fit in', either. But often, it was more that I couldn't understand why other people didn't see the obvious efficiency of my way of doing things -- they often couldn't understand the way I did things at all. I didn't 'play well with others' because I could always do things better, faster, etc. by doing them alone. Of course, that doesn't work in modern corporate America. It didn't work in the school system too well, either, but it was much easier to gain approbation in that arena. I was, 'tolerated'. I wonder how many children are having their individuality pummeled into non-existence by being molded into the system, today?

Bormyo, I think my father might have had some Aspie tendencies -- he never prospered, never 'got ahead', never 'worked well with others'. He didn't like to take lunch breaks at his construction site. I always chalked it up to being bribed to switching handedness from left to right for $5 during the depression (he ended up being a very angry person, who wrote and sawed right handed, but hammered lefty.) I now know he had a classic case of HD (a skin condition the result of severe gluten intolerance; gluten intolerance, and to a lesser extent, dairy intolerance are hallmarks of autism and Aspergers). He had a superior IQ (War Dept. measured it at 120) -- not too shabby. (I was mocked for letting mine be known in high school -- I had the highest IQ in a school of 3,000 students. Has done me absolutely no f****ing good in all my 55 years).

I think as this generation of children is diagnosed/treated/and, I hope, helped to deal with the spectrum of processing disorders that are related to metabolism, food sensitivity and brain chemistry, we all will learn more about how and why we did not fit into our round holes. Personally, I am once again learning to prefer my square corners, which I flaunted in childhood. But it took much courage to arrive at this point, being brave enough to accept the label of 'disabled', so that I would be financially (almost) viable.

LittleTree aka Stromek

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